The full conference programme is available HERE .
We look forward to welcoming all delegates for what promises to be an exciting range of presentations.
Please see below for titles and abstracts of Plenary presentations.
Professor Galina Velikova Professor Jose Maria Valderas
Professor Galina Velikova is an academic Medical Oncologist at the University of Leeds and Leeds Teaching Hospitals, UK with over 20 years track record of successful patient-centred research using electronic Patient-Reported-Outcome Measures in daily practice and clinical trials. She currently leads a National Institute for Health Research (NIHR) 5-year Programme Grant for applied research on patient self-reported symptoms and toxicity, using an online reporting system (QTool), uniquely integrated in electronic records, along re-designed care pathways for remote monitoring during cancer treatment to improve patient safety. Further research projects evaluate the use of the electronic system for remote monitoring and follow-up of cancer patients after treatment.
She has experience in leading collaborative research, both nationally and internationally, such as Quality of Life sub-studies of international breast cancer trials (TACT2, SUPREMO). Professor Velikova is past Chair of British Psychosocial Oncology Society, EORTC Quality of Life Group; past President of International Society for Quality of Life Research (ISOQOL) and Past member of NCRI Psychosocial Oncology and Survivorship Clinical Studies Group.
She is a practicing oncologist (Consultant in Medical Oncology) with clinical work focused on systemic treatment of breast cancer patients with early and advanced disease.
Professor Jose Maria Valderas is an Academic General Practitioner, with a commitment to research on patient centred care that is relevant for decision making in clinical practice and health policy. He leads the Health Services & Policy Research Group at the University of Exeter Medical School and on the patient-centred care theme of the Exeter Collaboration for Academic Primary Care (APEx).
His current research interests focus on the use of patient reports on their own health for decision making in clinical practice and health policy, and the improvement of processes of care (quality and safety), with a particular interest in patients with multiple conditions.
He is Lead for Advanced Health Services Methods in the MSc on Applied Health services Research at the University of Exeter. Since completing his training as a General Practitioner he has maintained an active clinical practice in different countries and in a variety of environments, including developing countries for very brief periods.
Jose-Maria is President Elect of the International Society for Quality of Life Research and Associate Editor of the European Journal of General Practice.
Plenary titles and abstracts
Using Patient Reported Outcome Measure (PROMs) in cancer care
Monitoring of patients’ physical and psychological problems during and after cancer treatment is essential in modern oncology practice. Traditional clinical methods can be supplemented by Patient-Reported Outcomes Measures (PROMs) measures. The potential role of PROMs is recognised and endorsed by national and international practice guidelines.
The introduction of formal measurement of PROMs in clinical practice is a complex health care innovation requiring careful planning, design and successful implementation of a number of essential components, such as choosing the patient questionnaire(s), a convenient affordable electronic method for reporting and display in hospital records and engaging clinicians to use and act on the reports.
There is mounting research evidence that using PROMs in individual patient care in oncology is beneficial to patients, but this approach has not found a place in routine clinical practice. A brief overview of this evidence will be provided.
Following this, the presentation will focus on examples of incorporating PROMs and eHealth interventions into routine patient care during and after cancer treatment, drawing on 20 years’ experience in Leeds of using electronic systems for capturing patient reported data in oncology settings. Examples will be given of: 1) Monitoring toxicity during systemic cancer treatment using online PROMs integrated with Electronic Patient Records (randomized trial part of NIHR eRAPID programme); 2) Service development project – Remote follow-up of testicular cancer patients using online PROMs plus community-based investigations.
Examples of other online PROMs systems will be presented. The values and challenges of PROMs integration in routine oncology practice will be discussed.
The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK
Jose M Valderas
The Patient-Reported Outcomes Measurement Information System (PROMIS) is a system for the measurement of patient reported outcomes whose development was funded by the US National Institute for Health. Its methodological rigor, scope, ambition and flexibility (including both standardized short forms and computerized adaptative administration) has turned it into one of the standards of PROMs measurement, although its use is still very limited outside the US.
The presentation will provide an overview of rationale for the development of the system, the methods employed in its development and the resulting scales and short forms and key characteristics, including Assessment Centre, the online platform supporting the use of PROMIs scales. Current applications and use of PROMIS in the UK will be reviewed and the potential for its application to support the management of patients in the NHS will be considered.